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I was recently diagnosed with anti-NMDA receptor encephalitis (burntsushi.net)

753 points by Tomte · 40 days ago · 249 comments on HN

Article summary

The author was recently diagnosed with anti-NMDA receptor encephalitis, a rare autoimmune disorder that causes inflammation in the brain. The author experienced a range of symptoms, including flu-like symptoms, anxiety, psychosis, and suicidal ideation, before being misdiagnosed with a psychiatric disorder. After a lucky connection with a doctor, the author received treatment and is now recovering. The author is grateful for the support of their loved ones and is spreading awareness about the disease to prevent misdiagnosis.

Main themes

  • Autoimmune disorders
  • Misdiagnosis
  • Recovery and treatment
  • Mental health
  • Gratitude and support
  • Raising awareness

What commenters say

  • The mortality rate of Hacker News readers is likely lower than the general population due to their higher socioeconomic status, but still significant enough to be a concern.
  • The complexity of the human body and its many potential failures is a remarkable and somewhat terrifying aspect of life.
  • Misdiagnosis of autoimmune diseases can have severe consequences, and patients should be aware of the possibility of being misdiagnosed with a psychiatric disorder.
  • The importance of patience and support from loved ones and community is crucial for individuals recovering from a serious illness or condition.
  • Raising awareness about rare diseases like anti-NMDA receptor encephalitis can help prevent misdiagnosis and improve treatment outcomes.
  • The impact of socioeconomic factors on mortality rates is significant, but may be balanced by other factors such as access to healthcare and lifestyle choices.
  • The experience of living with a serious illness can give individuals a new perspective on life and appreciation for their health.
  • The role of luck and circumstance in receiving proper diagnosis and treatment should not be underestimated, and can be a significant factor in recovery outcomes.